The 20 Best Trisomy 13 Doctors Near Me in Grand Rapids, MI

Find the Top Trisomy 13 Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 9 doctor with experience in Trisomy 13 near Grand Rapids, MI. Of these, 5 are Experienced and 4 are Advanced.

Location
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9 providers found
    Advanced in Trisomy 13
    Advanced in Trisomy 13

    Corewell Health Grand Rapids Hospitals Neonatology - Helen DeVos Children's

    100 Michigan Street Northeast, Floor 3W, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Mary Reinoehl is a Neonatologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 10 years. Dr. Reinoehl is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Trisomy 13, Wolf-Hirschhorn Syndrome, Atresia of Small Intestine, and Gastroschisis. Dr. Reinoehl is board certified in American Board Of Pediatrics and American Board Of Pediatrics.

    Advanced in Trisomy 13
    Pediatric Pulmonology
    Advanced in Trisomy 13
    Pediatric Pulmonology

    Corewell Health Pediatric Sleep Disorders Clinic - Grand Rapids

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    9+ years
    Languages Spoken:
    English
    Accepting New Patients

    Carolyn Dress is a Pediatric Pulmonologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 9 years. Dr. Dress is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Laryngomalacia, Trisomy 13, Duchenne Muscular Dystrophy, and Spinal Muscular Atrophy Type 2. Dr. Dress is board certified in American Board Of Pediatrics and American Board Of Pediatrics. Dr. Dress is currently accepting new patients.

    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine
    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine

    Corewell Health Pediatric Pain And Palliative Care 5301 - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5301, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    14+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jennifer Curtis is a Pediatrics specialist and a Palliative Medicine provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 14 years. Dr. Curtis is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Trisomy 13, Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A), Mucopolysaccharidosis Type 3B (MPS IIIB, Sanfilippo Syndrome B), and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Curtis is board certified in American Board Of Pediatrics, American Board Of Pediatrics, and American Board Of Pediatrics. Dr. Curtis is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine
    Advanced in Trisomy 13
    Pediatrics | Palliative Medicine

    Corewell Health Pediatric Pain And Palliative Care 5301 - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5301, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients

    Bradd Hemker is a Pediatrics specialist and a Palliative Medicine provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 24 years. Dr. Hemker is rated as an Advanced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Trisomy 13, Wildervanck Syndrome, Aase Syndrome, and CHARGE Syndrome. Dr. Hemker is board certified in American Board Of Pediatrics, American Board Of Pediatrics, and American Board Of Pediatrics. Dr. Hemker is currently accepting new patients.

    Experienced in Trisomy 13
    Experienced in Trisomy 13

    Corewell Health Pediatric Neurodevelopmental - Grand Rapids

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    12+ years
    Languages Spoken:
    English

    Megan Quist is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 12 years. Dr. Quist is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Autism Spectrum Disorder, Microcephaly, DiGeorge Syndrome, and Developmental Dysphasia Familial. Dr. Quist is board certified in American Board Of Pediatrics and American Board Of Pediatrics.

    Experienced in Trisomy 13
    Pediatric Neurology | Family Medicine
    Experienced in Trisomy 13
    Pediatric Neurology | Family Medicine

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients

    Seth Devries is a Pediatric Neurologist and a Family Medicine provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 18 years. Dr. Devries is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Absence Seizure, Seizures, Epilepsy Juvenile Absence, and Epilepsy in Children. Dr. Devries is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2017 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2015. Dr. Devries is currently accepting new patients.

    Experienced in Trisomy 13
    Pediatric Neurology
    Experienced in Trisomy 13
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    34+ years
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Fain is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 34 years. Dr. Fain is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. He is also highly rated in 84 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2016 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 1999. Dr. Fain is currently accepting new patients.

    Experienced in Trisomy 13
    Pediatric Pulmonology
    Experienced in Trisomy 13
    Pediatric Pulmonology

    Helen DeVos Children's Hospital Pulmonary And Sleep Medicine

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    40+ years
    Languages Spoken:
    English
    Accepting New Patients

    Susan Millard is a Pediatric Pulmonologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 40 years. Dr. Millard is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Laryngomalacia, Exocrine Pancreatic Insufficiency, Cystic Fibrosis, and Vocal Cord Dysfunction. Dr. Millard is board certified in American Board Of Pediatrics, Pediatric Pulmonology - 1992. Dr. Millard is currently accepting new patients.

    Experienced in Trisomy 13
    Experienced in Trisomy 13

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English

    Brooke Geddie is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 21 years. Dr. Geddie is rated as an Experienced provider by MediFind in the treatment of Trisomy 13. She is also highly rated in 47 other conditions, according to our data. Her clinical expertise encompasses Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy. Dr. Geddie is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Showing 1-9 of 9

    Last Updated: 04/28/2026

    What is the definition of Trisomy 13?

    Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities, very small or poorly developed eyes (microphthalmia), extra fingers or toes, an opening in the lip (a cleft lip) with or without an opening in the roof of the mouth (a cleft palate), and weak muscle tone (hypotonia). Due to the presence of several life-threatening medical problems, many infants with trisomy 13 die within their first days or weeks of life. Only five percent to 10 percent of children with this condition live past their first year.

    When should I see a Trisomy 13 doctor near Grand Rapids, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Trisomy 13 doctor near Grand Rapids, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Trisomy 13 doctors near Grand Rapids, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Trisomy 13 doctors near Grand Rapids, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Trisomy 13 doctor near Grand Rapids, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Trisomy 13 doctor search results page. 

    Why is it important to get a second opinion from a different Trisomy 13 doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Trisomy 13 doctor near Grand Rapids, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Trisomy 13 doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Trisomy 13 doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Trisomy 13 doctors near Grand Rapids, MI?

    Look for the filter feature on the left side of the Trisomy 13 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Trisomy 13 doctor that offers video calls?

    Look for the filter feature on the left-side of the Trisomy 13 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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